After watching her daughter speak at the Mayo Clinic Conference about her experiences with the healthcare industry, this poemee came to talk with me.
She was very proud of her daughter and has hopes for “a bright future that’s as pain free as possible,” where her daughter “has enough energy to be who she is.” When I asked what advice she has for others in similar situations, she spoke this poem to me.
Caregiver’s Notes
Question the specialists
keep searching, don’t settle.
Stay positive and take care
of yourself. Find forms of joy
however you can: go jogging or
walk the dogs, try to spend
time alone. Find quiet, but
if quiet’s too loud, buy a ticket
to the Minnesota Orchestra.
Above all, give your
unbending, unending love.
She wanted to help people feel comfortable and transform the shame around colon issues. "I want to talk about things that matter, the things people don't want to discuss. I want to help them feel okay talking about it."
When we met, she was coming off a stretch of nine 14-hour shifts. She was tired but in good spirits.
She reflected on how her resilience was born from moments of shared mirth amid life's trying chapters.
“Life is complex and dirty, but digging in is important to me,” she said. “Maybe if more of us understood history, we could understand each other better.”
We are expected to research, contribute to scholarship, earn grants – all on our own time.
We are expected to research, contribute to scholarship, earn grants – all on our own time.
Every day, I try to see through the patient lens, and I ask: what can we do to change this broken system?
She was very proud of her daughter and has hopes for “a bright future that’s as pain free as possible”
“I’m trying to focus on doing little things to make people feel better during everything that’s going on in the world,” she told me.
“It’s hard to see others struggle,” she said. “How can I help with their struggle without struggling myself?”
"I'd tell her it's OK to be loud...it's OK to challenge and to bring all of you into these spaces where no one looks like you..."
“I'm continuously questioning: did I do it right?" she said. "I’ve always done a good amount of second-guessing, but I’m re-learning how to show up differently.”
“It’s weird,” she said. “This is one of the biggest accomplishments of my life, but it doesn’t feel like it.”
"It changed me; It changed the way I look at life," said this woman about her profound experience during her pregnancy.
“It’s been more challenging than normal lately,” she said. “I’m only one person. It's a struggle for me to say no, but I can’t do everything that’s being asked of me right now.”
"I've been processing how to make the most of the small amount of life we have to live," said this physician.
"I've been processing how to make the most of the small amount of life we have to live," said this physician.
“I like feeling small,” he told me. “Nature has always made me feel small.” He described the sense of wonder that feeling gave him.
“I feel like I have decision fatigue,” she told me. It was normal for her to make many choices at work, but COVID had dramatically increased the number of medical decisions she had to make at home.
“I know ‘vibe’ is kind of a nonspecific term, but I think about people’s vibes all the time,” he said.“ Sometimes you come into a room and it’s just off.
This physician discussed being the only one in his practice network with expertise in patients with a specific type of chronic pain.
“Our constituents are uniquely affected by the pandemic,” they said. This poemee was an educational psychologist who spoke about how much they missed working in person with med students, healthcare staff, and medical educators.